Gracelyn's Story: Family Pictures

Our Story

Jeff and Andee were married in 2003. We were both born and raised in Utah. We have three sweet children. During a 23 week check up with our second child, the baby was diagnosed with Pulmonary Stenosis, a heart defect. She was born on December 16, 2009 when the doctors discovered she actually had Pulmonary Atresia, Tricuspid Atresia and Atrial Ectopic Tachycardia. After she was born she stayed at Primary Children's Medical Center for three weeks. During that time she had a BT Shunt and stent placed in her heart.

On June 4, 2010, Gracelyn received her Glenn shunt. During that time they removed her BT shunt and stent. She is doing great! The next step will be the Fontan procedure some time after she turns two.

We intend for this blog to keep family and friends aware of what's going on as our story progresses. We have learned so much and found strength from the blogs and websites of those that have previously gone through this that we want to share our story for those who will unfortunately face this as well, as there is currently no cure for Congenital Heart Disease. We are grateful for all the prayers on our behalf.

UPDATE: July 2013: Gracelyn was scheduled to have her Fontan this summer. Doctors feel like she is doing so great it can be postponed until next summer. We have recently contacted the Children's Hospital of Boston for second opinion. They believe they have an alternative to the Fontan. In September we will head to Boston to see what they can do for her.

UPDATE: April 2015- Gracelyn had her Fontan surgery on April 27, 2015. She flew through the procedure and recovery. It didn't happen immediately, but by day two she was a beautiful shade of pink.

Friday, June 4, 2010

Family Pictures

Wednesday evening an old friend of mine from elementary (we even had best friend necklaces. :) ) came by to take some pictures of our little family at our home. She was so nice to get them to me so that we would have them before today. As we sit here waiting for our little lady I am looking at them and wanted to share. I LOVE THEM! They are priceless to me. I am usually behind the camera and never in any pictures with my kids. (I am on the Mac and Jeff hasn't put any of my Adobe programs on yet so all I can do is copy and paste these straight from her blog so some of them are cut off. )Thank you so much Melanie!http://melaniesphotoshoppe.blogspot.com/

3 comments:

kurtisJune 4, 2010 at 10:30 AM
Those are adorable. I love the one of her hand holding the rail :)
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kurtisJune 4, 2010 at 10:31 AM
O by the way, it's Mindi not Kurt. Although i'm sure he would think they are cute too, he doesn't normally use words like 'adorable' LOL!
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AnonymousJune 7, 2010 at 10:48 AM
So glad I could take them for you. YOur family is such a sweet adorable family. Wish I could see them though. They just have an X on them. If you hold down shift you can shrink them so they are not cut off. :)
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Our Story

Friday, June 4, 2010

Family Pictures

3 comments:

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