After coming out of surgery yesterday, Jeff and Andee met with the doctor who did it. She wasn't intubated and the doctor said he saw Grace open her eyes afterward. The procedure went well, they were able to get through her pulmonary valve and enlarge it with the balloon. They fixed what they needed to. To get to the pulmonary valve they went through the tricuspid valve. When they were going through the tricuspid, they discovered that it has a very small opening. This is something that wasn't discovered before. So it was good and bad news. The pulmonary valve is good now and has a stent in it, but unfortunately her tricuspid valve is not working properly. So her diagnosis is now Pulmonary valve artresia, severe tricuspid stenosis and ____ hypoplasia. After coming out of surgery, Grace did very well at first. However, she is still on the prostiglandin and they needed to increase that dose. They have had problems getting a pulse in her right leg (where the procedure was done) and it has turned dark purple. They have given her aspirin and blood thinners to prevent any blood clots. During the night Gracelyn stopped breathing three times and had to be resuscitated three times, bless her heart. This was caused from the increased dose of medication that is keeping her alive and the morphine they have been giving her. She is not doing very well at the moment and will have surgery either today, Sunday or Monday to put a shunt into her little heart. To do the shunt they plan to go in through her side, possibly her chest to reach her heart. We are thankful that the procedure yesterday went well, and are lucky that this problem with her triscupid valve was discovered. Everything has gone so well with her, and we can only continue to pray that her next surgery will go as well.
- Camee
Where to even start
7 months ago
Andee - I wish I could be there to give you a big hug. You are the best little mom. Good luck with the next few days. Gracelyn is beautiful!
ReplyDeleteAll my thoughts and prayers,
Jen
We hope things calm down for you guys over the next couple days. There is no doubt that you have one beautiful little fighter on your hands! You will continue to be in our prayers
ReplyDeleteAndee,I'm glad to hear surgery went well. I hope all goes well with tomorrows surgery as well. Little Grace will be in our prayers as well as you and Jeff. Believe in Miracles!
ReplyDeleteLove, Cathy