Gracelyn's Story: First time playing in the snow...

Our Story

Jeff and Andee were married in 2003. We were both born and raised in Utah. We have three sweet children. During a 23 week check up with our second child, the baby was diagnosed with Pulmonary Stenosis, a heart defect. She was born on December 16, 2009 when the doctors discovered she actually had Pulmonary Atresia, Tricuspid Atresia and Atrial Ectopic Tachycardia. After she was born she stayed at Primary Children's Medical Center for three weeks. During that time she had a BT Shunt and stent placed in her heart.

On June 4, 2010, Gracelyn received her Glenn shunt. During that time they removed her BT shunt and stent. She is doing great! The next step will be the Fontan procedure some time after she turns two.

We intend for this blog to keep family and friends aware of what's going on as our story progresses. We have learned so much and found strength from the blogs and websites of those that have previously gone through this that we want to share our story for those who will unfortunately face this as well, as there is currently no cure for Congenital Heart Disease. We are grateful for all the prayers on our behalf.

UPDATE: July 2013: Gracelyn was scheduled to have her Fontan this summer. Doctors feel like she is doing so great it can be postponed until next summer. We have recently contacted the Children's Hospital of Boston for second opinion. They believe they have an alternative to the Fontan. In September we will head to Boston to see what they can do for her.

UPDATE: April 2015- Gracelyn had her Fontan surgery on April 27, 2015. She flew through the procedure and recovery. It didn't happen immediately, but by day two she was a beautiful shade of pink.

Tuesday, November 30, 2010

First time playing in the snow...

We took Gracelyn out to play in the snow a bit on Saturday. She wasn't sure what to think about it. First she stared at it for a bit...

then she began to lift her fit up and down in it...

then came the courage to touch it...

she pulled some really funny faces as it stuck to her fingers...

and then, like every thing else, she ate it.

3 comments:

CelesteNovember 30, 2010 at 10:28 PM
Too cute! She looks so good!
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travis and shaleeDecember 3, 2010 at 10:21 PM
Oh my heck! She is so stinkin cute! Reading your posts, she reminds me of my baby!!! They would be such good friends! :) and your last post about her new bed is HILARIOUS to me because it is almost as if I had written it myself! Hahaha. I love it!
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AmberDecember 16, 2010 at 11:53 AM
Happy Birthday Gracelyn!!! We love you so much and are so blessed to have you as a niece. We hope you have a wonderful first birthday and are very excited to spend it with you tonight!

Love, Uncle Jared and Auntie Amber
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Our Story

Tuesday, November 30, 2010

First time playing in the snow...

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