Jeff and Andee were married in 2003. We were both born and raised in Utah. We have three sweet children. During a 23 week check up with our second child, the baby was diagnosed with Pulmonary Stenosis, a heart defect. She was born on December 16, 2009 when the doctors discovered she actually had Pulmonary Atresia, Tricuspid Atresia and Atrial Ectopic Tachycardia. After she was born she stayed at Primary Children's Medical Center for three weeks. During that time she had a BT Shunt and stent placed in her heart.
On June 4, 2010, Gracelyn received her Glenn shunt. During that time they removed her BT shunt and stent. She is doing great! The next step will be the Fontan procedure some time after she turns two.
We intend for this blog to keep family and friends aware of what's going on as our story progresses. We have learned so much and found strength from the blogs and websites of those that have previously gone through this that we want to share our story for those who will unfortunately face this as well, as there is currently no cure for Congenital Heart Disease. We are grateful for all the prayers on our behalf.
UPDATE: July 2013: Gracelyn was scheduled to have her Fontan this summer. Doctors feel like she is doing so great it can be postponed until next summer. We have recently contacted the Children's Hospital of Boston for second opinion. They believe they have an alternative to the Fontan. In September we will head to Boston to see what they can do for her.
UPDATE: April 2015- Gracelyn had her Fontan surgery on April 27, 2015. She flew through the procedure and recovery. It didn't happen immediately, but by day two she was a beautiful shade of pink.
Friday, September 10, 2010
More Firsts for the Little Lady
We have been having fun with more firsts from our little lady this summer. With her being smaller I think we forget how old she is sometimes. She had been getting frustrated watching us eat so I decided it was time that she got the enjoyment of feeding herself dinner as we ate. She got a nice bowl of carrots and bananas. She ate every bit of it and enjoyed every minute of it. She was a mess. She headed straight for a bath when she was done (maybe that's why we haven't done it yet.)
Since I was little we have gone camping a lot of the summer. We still go camping with my family nearly every weekend during the summer. It has been fun to be able to take my kids where I spent a lot of my childhood and see how they enjoy it. Gracelyn's first night camping was GREAT! She only woke up once! I decided I would move there if it continued. It didn't! My dad and grandpa built a playground for us kids when we were little. Now Mr. C and Gracelyn are enjoying it. Gracelyn finally got a chance a swinging on her own and she loved it! She giggled and squealed the whole time. My dad and Mr. C walk the river a lot. One weekend they decided to put Gracelyn in with them. It was cold, but you can see how unhappy it made her...
Gracelyn also got a first chance at riding four wheelers with us. We strapped her to me and headed up Jeff's parent's property. Again, she squealed the whole time. Whenever you put Mr. C on a four wheeler he goes to sleep, always has. Not Gracelyn. She let the wind blow through her hair and thoroughly enjoyed herself. She is definitely one of us!Earlier this summer we took her swimming. We got a really long oxygen cord and swam where ever we wanted. Again, she loved it! She is so fun and smiles at just about everything our crazy life brings her way.
".....Heaven's kindness will never depart from you, regardless of what happens......Bad days come to an end, faith always triumphs, and heavenly promises are always kept."
--Jeffrey R. Holland--
"Life is hard, but life is simple. Get on the path and never, ever give up. You never give up. You just keep on going. You don’t quit, and you will make it."-Lawrence E. Corbridge
"A pessimist sees the difficulty in every opportunity; an optimist sees the opportunity in every difficulty." -Winston Churchill
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