Gracelyn's Story: Amazing Grace Blanket

Our Story

Jeff and Andee were married in 2003. We were both born and raised in Utah. We have three sweet children. During a 23 week check up with our second child, the baby was diagnosed with Pulmonary Stenosis, a heart defect. She was born on December 16, 2009 when the doctors discovered she actually had Pulmonary Atresia, Tricuspid Atresia and Atrial Ectopic Tachycardia. After she was born she stayed at Primary Children's Medical Center for three weeks. During that time she had a BT Shunt and stent placed in her heart.

On June 4, 2010, Gracelyn received her Glenn shunt. During that time they removed her BT shunt and stent. She is doing great! The next step will be the Fontan procedure some time after she turns two.

We intend for this blog to keep family and friends aware of what's going on as our story progresses. We have learned so much and found strength from the blogs and websites of those that have previously gone through this that we want to share our story for those who will unfortunately face this as well, as there is currently no cure for Congenital Heart Disease. We are grateful for all the prayers on our behalf.

UPDATE: July 2013: Gracelyn was scheduled to have her Fontan this summer. Doctors feel like she is doing so great it can be postponed until next summer. We have recently contacted the Children's Hospital of Boston for second opinion. They believe they have an alternative to the Fontan. In September we will head to Boston to see what they can do for her.

UPDATE: April 2015- Gracelyn had her Fontan surgery on April 27, 2015. She flew through the procedure and recovery. It didn't happen immediately, but by day two she was a beautiful shade of pink.

Thursday, October 17, 2013

Amazing Grace Blanket

When Gracelyn had her last surgery my mom made her a beautiful blanket with fabric hearts that represented prayers being said for her all over the world. We sent it into the OR with her. It was wonderful! Everyone loved it! The morning we left for Boston my mom gave her this Amazing Grace blanket. I LOVE IT! I’ve asked Grace if I could have it, but she won’t let go of it. ;) Thank you Mom! We love OUR blanket!

- I have to confess….the first night we were in Boson (you know, the night she sang for hours about missing her siblings) I stole it from her once she feel asleep. SSHHH! My sweet mom has since started me my own matching blanket. Guess she felt bad Gracelyn's blanket has been stolen. :)

Our Story

Thursday, October 17, 2013

Amazing Grace Blanket

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