Jeff and Andee were married in 2003. We were both born and raised in Utah. We have three sweet children. During a 23 week check up with our second child, the baby was diagnosed with Pulmonary Stenosis, a heart defect. She was born on December 16, 2009 when the doctors discovered she actually had Pulmonary Atresia, Tricuspid Atresia and Atrial Ectopic Tachycardia. After she was born she stayed at Primary Children's Medical Center for three weeks. During that time she had a BT Shunt and stent placed in her heart.
On June 4, 2010, Gracelyn received her Glenn shunt. During that time they removed her BT shunt and stent. She is doing great! The next step will be the Fontan procedure some time after she turns two.
We intend for this blog to keep family and friends aware of what's going on as our story progresses. We have learned so much and found strength from the blogs and websites of those that have previously gone through this that we want to share our story for those who will unfortunately face this as well, as there is currently no cure for Congenital Heart Disease. We are grateful for all the prayers on our behalf.
UPDATE: July 2013: Gracelyn was scheduled to have her Fontan this summer. Doctors feel like she is doing so great it can be postponed until next summer. We have recently contacted the Children's Hospital of Boston for second opinion. They believe they have an alternative to the Fontan. In September we will head to Boston to see what they can do for her.
UPDATE: April 2015- Gracelyn had her Fontan surgery on April 27, 2015. She flew through the procedure and recovery. It didn't happen immediately, but by day two she was a beautiful shade of pink.
Monday, October 18, 2010
Heart Walk
On September 11, my family and my parents drove to Provo for the annual Intermountain Healing Hearts Heart Walk. I must admit I am getting more comfortable with these gatherings. The IHH arranged for a 1 mile walk to bring awareness to Congenital Heart Disease. They had around 700 people participate! What a great turnout! As hard as it is to be a part of this group of people it was great to walk among them. Their courage and strength is overwhelming. It is a group of amazing and strong people who I look up to.Before the walk started they began a silent auction. I wanted to be able to give back something for all that we have been given, so we decided to donate a new product I have fallen in love with. I filled it full of pictures and stated that it was donated in celebration of Gracelyn- CHD survivor. We were able to get $75 from it. * Side note: Jeff and I are now selling these. Our website will be completed soon. You will be able to purchase them there. If you are interested in them now, just send me an email. We have a couple different sizes and colors.After the walk we were able to take a picture with most of those that participated. First just the CHD survivors and then the whole group. Then they held an angel ceremony. It was a little hard to sit through. Families had the chance to release butterflies on behalf of those they had lost to CHD. During the ceremony one of the butterflies flew to my mom and landed on her shoulder. It stayed there for a good half hour.Once again I am very grateful to the IHH committee for all they do on our behalf. I am also grateful to my parents for going with us and being a part of something that means so much to us. I love you both! I couldn't make it without you!
".....Heaven's kindness will never depart from you, regardless of what happens......Bad days come to an end, faith always triumphs, and heavenly promises are always kept."
--Jeffrey R. Holland--
"Life is hard, but life is simple. Get on the path and never, ever give up. You never give up. You just keep on going. You don’t quit, and you will make it."-Lawrence E. Corbridge
"A pessimist sees the difficulty in every opportunity; an optimist sees the opportunity in every difficulty." -Winston Churchill
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