Gracelyn's Story: Gracelyn SANS Oxygen

Our Story

Jeff and Andee were married in 2003. We were both born and raised in Utah. We have three sweet children. During a 23 week check up with our second child, the baby was diagnosed with Pulmonary Stenosis, a heart defect. She was born on December 16, 2009 when the doctors discovered she actually had Pulmonary Atresia, Tricuspid Atresia and Atrial Ectopic Tachycardia. After she was born she stayed at Primary Children's Medical Center for three weeks. During that time she had a BT Shunt and stent placed in her heart.

On June 4, 2010, Gracelyn received her Glenn shunt. During that time they removed her BT shunt and stent. She is doing great! The next step will be the Fontan procedure some time after she turns two.

We intend for this blog to keep family and friends aware of what's going on as our story progresses. We have learned so much and found strength from the blogs and websites of those that have previously gone through this that we want to share our story for those who will unfortunately face this as well, as there is currently no cure for Congenital Heart Disease. We are grateful for all the prayers on our behalf.

UPDATE: July 2013: Gracelyn was scheduled to have her Fontan this summer. Doctors feel like she is doing so great it can be postponed until next summer. We have recently contacted the Children's Hospital of Boston for second opinion. They believe they have an alternative to the Fontan. In September we will head to Boston to see what they can do for her.

UPDATE: April 2015- Gracelyn had her Fontan surgery on April 27, 2015. She flew through the procedure and recovery. It didn't happen immediately, but by day two she was a beautiful shade of pink.

Friday, August 6, 2010

Gracelyn SANS Oxygen

I was able to take some rare pictures of my little lady this weekend. First because I actually caught a picture of her smiling and second because she is oxygen free. I LOVE them! I can't help but smile every time I look at them.

6 comments:

The Cragun'sAugust 6, 2010 at 8:43 AM
Yeah! She is so cute
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Mindi DAugust 6, 2010 at 9:04 AM
Adorable! I love them!
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The TimothysAugust 6, 2010 at 12:01 PM
oh my goodness! they are ADORABLE!!! i'm glad she is O2 free! hope she is feeling better! :)
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Eric and Cami August 6, 2010 at 4:06 PM
With all that she has been going through, I'm so glad to see such a sweet smile.
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BeccaAugust 6, 2010 at 9:22 PM
That is so awesome you ditched the O2!! And I can't believe you took those pictures your self. So very cute!!!

Becca-Ellie's mom
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AnonymousAugust 9, 2010 at 10:29 AM
Oh my gosh! Beautiful! Talked to your mom yesterday... and she is looking over stressed too! Makes me wonder about how you are coping with all the worries. Hang in there....You guys are continually in our prayers...With our love.
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Our Story

Friday, August 6, 2010

Gracelyn SANS Oxygen

6 comments:

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