Making progress...

Gracelyn is doing great! We are so proud of her! Friday she ate her first full bottle. If she keeps it up she could have her feeding tube out soon. We can't wait to get rid of it!

We met with our pediatrician Thursday. It is nice to have someone we can take her to that is close to home. Her doctor is the same doctor that we have been taking Mr. C to for the past three years and coincidentally happens to have done his fellowship in cardiology. After speaking with him I feel confident that she is in good hands. He gave us some pretty strict restrictions when it comes to where we can take her and who can see her. Pretty much no where and no one until May 1st. He feels that if she were to get RSV it would probably take her. Mr. C has been sick, but he feels it is important for them to bond. Anytime he holds her he needs to be in clean clothes with a mask and clean hands. We knew we needed to be careful with her, but I didn't expect what he had to say. It is completely different from what we are used to at our house, we are always on the go, but I know this short time will be worth it to keep her healthy. Mr. C couldn't have said it any better than when he told me that he "wanted to take her to everyone's house so everyone could see her out of my belly." She is such a sweet beautiful baby I hate to not be able to share her sweet spirit with the world.

They weighed and measured her for the first time since we left Primary's. Here is where she is at:
Weight: 7lbs
Height: 20.25"
Saturation: between 86-90

Her weight is down two ounces from when we left the hospital. I would be worried about this, but we have had a few problems with her diet since we returned home. Her diet consists of 2 parts breast milk to one part Pregestimil formula. When we left Primary's we were given some formula since it was a holiday and it is hard to find. When we got home I ordered some from Target and when I went to pick it up they didn't bother to let me know they couldn't get it in. She was on just breast milk for a couple of days and her little belly struggled. She would just cry and wouldn't sleep much. Fortunately, I have great friends and within hours of making the call I had 2 cans of Pregestimil brought to my house from McKay Dee. Thanks Kathryn! We got everything straightened out and her diet back to normal. She isn't fussy anymore and is sleeping, waking only once during the night to eat. We will go back to the pediatrician on Thursday and he hopes that she will have gained an ounce each day. Her sats were great! Higher than they want them. Hopefully that means we can lose the oxygen soon too. We will also be meeting with our cardiologist on Wednesday. We pray all will go well with both appointments and that she continues to make progress.