Gracelyn's Story: HAPPY NEW YEAR!

Our Story

Jeff and Andee were married in 2003. We were both born and raised in Utah. We have three sweet children. During a 23 week check up with our second child, the baby was diagnosed with Pulmonary Stenosis, a heart defect. She was born on December 16, 2009 when the doctors discovered she actually had Pulmonary Atresia, Tricuspid Atresia and Atrial Ectopic Tachycardia. After she was born she stayed at Primary Children's Medical Center for three weeks. During that time she had a BT Shunt and stent placed in her heart.

On June 4, 2010, Gracelyn received her Glenn shunt. During that time they removed her BT shunt and stent. She is doing great! The next step will be the Fontan procedure some time after she turns two.

We intend for this blog to keep family and friends aware of what's going on as our story progresses. We have learned so much and found strength from the blogs and websites of those that have previously gone through this that we want to share our story for those who will unfortunately face this as well, as there is currently no cure for Congenital Heart Disease. We are grateful for all the prayers on our behalf.

UPDATE: July 2013: Gracelyn was scheduled to have her Fontan this summer. Doctors feel like she is doing so great it can be postponed until next summer. We have recently contacted the Children's Hospital of Boston for second opinion. They believe they have an alternative to the Fontan. In September we will head to Boston to see what they can do for her.

UPDATE: April 2015- Gracelyn had her Fontan surgery on April 27, 2015. She flew through the procedure and recovery. It didn't happen immediately, but by day two she was a beautiful shade of pink.

Friday, January 1, 2010

HAPPY NEW YEAR!

We are on our way home.

4 comments:

UnknownJanuary 2, 2010 at 9:13 AM
WHOO HOO!!! Congratulations! Hope everything continues to go well!!
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Eric and Cami January 2, 2010 at 5:42 PM
Yea! This is the way to bring in the new year! I'm so happy she is doing well. I've been impressed by your strength you guys have had through all of this, amazing! Can't wait to see her in person, she is too cute:)
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UnknownJanuary 2, 2010 at 5:54 PM
The best news of the day! I hope everything continues to go in this great direction. You will continue to be in our prayers. Annette
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HezraBezJanuary 3, 2010 at 6:26 PM
We are so happy for all of you. You finally get to enjoy your little family at home. It will still be a long road. Please let us know if there is anything we can do! Remember, it is better to let others help so you can have energy for the really important part-your kids. So, let people do the cooking, cleaning and laundry. Thank you for keeping us all informed!
Heather
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Our Story

Friday, January 1, 2010

HAPPY NEW YEAR!

4 comments:

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