Gracelyn's Story: Prayer Blanket

Our Story

Jeff and Andee were married in 2003. We were both born and raised in Utah. We have three sweet children. During a 23 week check up with our second child, the baby was diagnosed with Pulmonary Stenosis, a heart defect. She was born on December 16, 2009 when the doctors discovered she actually had Pulmonary Atresia, Tricuspid Atresia and Atrial Ectopic Tachycardia. After she was born she stayed at Primary Children's Medical Center for three weeks. During that time she had a BT Shunt and stent placed in her heart.

On June 4, 2010, Gracelyn received her Glenn shunt. During that time they removed her BT shunt and stent. She is doing great! The next step will be the Fontan procedure some time after she turns two.

We intend for this blog to keep family and friends aware of what's going on as our story progresses. We have learned so much and found strength from the blogs and websites of those that have previously gone through this that we want to share our story for those who will unfortunately face this as well, as there is currently no cure for Congenital Heart Disease. We are grateful for all the prayers on our behalf.

UPDATE: July 2013: Gracelyn was scheduled to have her Fontan this summer. Doctors feel like she is doing so great it can be postponed until next summer. We have recently contacted the Children's Hospital of Boston for second opinion. They believe they have an alternative to the Fontan. In September we will head to Boston to see what they can do for her.

UPDATE: April 2015- Gracelyn had her Fontan surgery on April 27, 2015. She flew through the procedure and recovery. It didn't happen immediately, but by day two she was a beautiful shade of pink.

Friday, April 17, 2015

Prayer Blanket

Some of you may remember Grace's prayer blanket from her last surgery. People would always tell us they were praying for her. We came up with the idea to have families bring a piece of material that could represent them and the prayers they were saying for her. When we handed her to the doctors to go in the OR, she was wrapped up in the blanket.

We would like to do the same thing again. My mom is making her another prayer blanket. This time, since she is old enough to read, we want names written on them. We will supply the hearts this time, so they are all the same.

If you are interested in writing on a heart, let us know. My mom has some and so do I. We will surprise Grace with it when talk to her about the having the surgery. Feel free to call or text either of us. My number is 801.645.1379.