Gracelyn's Story: Leaving for Boston...

Our Story

Jeff and Andee were married in 2003. We were both born and raised in Utah. We have three sweet children. During a 23 week check up with our second child, the baby was diagnosed with Pulmonary Stenosis, a heart defect. She was born on December 16, 2009 when the doctors discovered she actually had Pulmonary Atresia, Tricuspid Atresia and Atrial Ectopic Tachycardia. After she was born she stayed at Primary Children's Medical Center for three weeks. During that time she had a BT Shunt and stent placed in her heart.

On June 4, 2010, Gracelyn received her Glenn shunt. During that time they removed her BT shunt and stent. She is doing great! The next step will be the Fontan procedure some time after she turns two.

We intend for this blog to keep family and friends aware of what's going on as our story progresses. We have learned so much and found strength from the blogs and websites of those that have previously gone through this that we want to share our story for those who will unfortunately face this as well, as there is currently no cure for Congenital Heart Disease. We are grateful for all the prayers on our behalf.

UPDATE: July 2013: Gracelyn was scheduled to have her Fontan this summer. Doctors feel like she is doing so great it can be postponed until next summer. We have recently contacted the Children's Hospital of Boston for second opinion. They believe they have an alternative to the Fontan. In September we will head to Boston to see what they can do for her.

UPDATE: April 2015- Gracelyn had her Fontan surgery on April 27, 2015. She flew through the procedure and recovery. It didn't happen immediately, but by day two she was a beautiful shade of pink.

Thursday, September 12, 2013

Leaving for Boston...

Gracelyn received this poster on Tuesday from all of the sweet kids in her Sunbeam class. Gracelyn has THE best teachers EVER! I can't thank them enough for all they have done to make her feel loved. Thanks Joey, Suzanne and Amanda! She loves you all!

As we were leaving there were signs placed all along our way! She LOVED them! Thank you!

She was so happy to be flying on the airplane. She was very patient with the oxygen and mask that she had to wear.

It wasn't until two hours into the flight that she lost her excitement. She cried and cried and CRIED for her grandma. She kept telling me that she "just needs her grandma."

We had a great flight. It was even 40 minutes early! As we were landing you could see what a beautiful place it is. We hope to have some time to see it! Thanks for all the prayers!

1 comment:

UnknownSeptember 13, 2013 at 8:53 PM
So excited for you guys. I know you are worried... but you also know in your heart of hearts you have to try what ever possibility you have. And if this would fix the problems... Our prayers and thoughts, and good vibes, and love ...!
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Thursday, September 12, 2013

Leaving for Boston...

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