Cardiology Appointment

Last Tuesday, November 2, Gracelyn went in for a check up. This was one of the most positive appointments we have had over the last year. Not to mention quick. We were back home within four hours. They checked her O2 saturation and at one point she hit 91%. That wasn't what we were expecting. I don't know why because she has been beautiful and pink! Her x-rays looked great as well! Her doctor was very pleased with how she is doing. She is still only in the 5% on weight, but she has consistently stayed there. She may just be a little girl. The cardiologist loved her chubby, rosy cheeks. ME TOO! We also took another huge step. Gracelyn was removed from her Propranolol (beta-blocker). It is the medication that has controlled us over the 11 months. We had to give it to her every 7 hours. The Propranolol was used to control her tachycardia. Originally when they put her on it they hoped that it was only caused by surgery and that it would be gone in a year. They are hoping it is now gone. She was taken off of it for a week and today we go to Primary's to have a monitor hooked to her to see how she is doing without it over the next little bit. We pray all is well. It has been nerve racking with her not on it, but wonderful!

We are so blessed to have her doing so well. It was wonderful at this appointment to have no talk of surgery. We know it is in the future, how far we don't know, but for now we will go on with "normal" life. She doesn't go back until MARCH! At that time they will do an echo on her.