Gracelyn's Story: Tubes tomorrow at 1 p.m.

Our Story

Jeff and Andee were married in 2003. We were both born and raised in Utah. We have three sweet children. During a 23 week check up with our second child, the baby was diagnosed with Pulmonary Stenosis, a heart defect. She was born on December 16, 2009 when the doctors discovered she actually had Pulmonary Atresia, Tricuspid Atresia and Atrial Ectopic Tachycardia. After she was born she stayed at Primary Children's Medical Center for three weeks. During that time she had a BT Shunt and stent placed in her heart.

On June 4, 2010, Gracelyn received her Glenn shunt. During that time they removed her BT shunt and stent. She is doing great! The next step will be the Fontan procedure some time after she turns two.

We intend for this blog to keep family and friends aware of what's going on as our story progresses. We have learned so much and found strength from the blogs and websites of those that have previously gone through this that we want to share our story for those who will unfortunately face this as well, as there is currently no cure for Congenital Heart Disease. We are grateful for all the prayers on our behalf.

UPDATE: July 2013: Gracelyn was scheduled to have her Fontan this summer. Doctors feel like she is doing so great it can be postponed until next summer. We have recently contacted the Children's Hospital of Boston for second opinion. They believe they have an alternative to the Fontan. In September we will head to Boston to see what they can do for her.

UPDATE: April 2015- Gracelyn had her Fontan surgery on April 27, 2015. She flew through the procedure and recovery. It didn't happen immediately, but by day two she was a beautiful shade of pink.

Thursday, May 20, 2010

Tubes tomorrow at 1 p.m.

Sorry for the play by play lately. It is much easier to blog the info than to make a bunch of calls. Dr. Pinto (cardiologist) called this morning and said that she has spoken with all involved and that they agree she will be okay to have her tubes tomorrow and keep her heart surgery scheduled for June 4, two weeks. YEAH! I am so happy for Gracelyn. I aslo heard from the ENT's office and they have her scheduled for 1:00 p.m. tomorrow for the tubes. Dr. Pinto will come and take a look at her heart while we are in recovery. I am so grateful for my pediatrician. I am grateful that he is looking out for Gracelyn (and myself as well, I think he realized I was done). He didn't give up until we got results. Thank you Dr. Rose!

2 comments:

Kurtis and CameeMay 21, 2010 at 10:24 AM
Good Luck with your tubes Gracelyn. We hope your ears start feeling better soon. Love you!
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Mindi DMay 21, 2010 at 10:59 AM
I love him too, he truely is the greatest! I'm sooo happy for lil one, she will be so much happier! June 4.. sigh .. that's my brothers birthday, it's a good day! it will come and go before you know it. Hang in there :)
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Our Story

Thursday, May 20, 2010

Tubes tomorrow at 1 p.m.

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